International Legionella Rehabilitation Survey

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International Legionella Rehabilitation Survey
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There is a very little literature or information regarding surviving and coping with the aftermath of Legionnaires disease and even less money to fund it.

Doctors all over the world don't have very much hard data to offer recommendations for patients, hopefully this survey will change that
situation.

I am still formulating my ideas, so feel free to comments, express your needs or other requirements, etc. No real names will appear in the results, and it goes with saying all information will remain confidential.

Only LD survivors know the real truth and have the experience. I am hoping this survey will discover useful hints and tips from various parts of the world that can be shared for the benefit of everyone.

Of course, if nobody participates there will be no results.

Since there is no money (except mine) and my spare time, the survey will be emailed. It will take time to compile, conduct and report, so please don't expect results overnight.

The survey will comprise a simple questionnaire asking basic questions about health before and after, medications, exercise, diet, etc.

Since this is a low cost survey, I can't accept a qualified acceptance; by that I mean a person that wants to do bits of the survey. Qualified acceptances would be classed as No, I simply
dont have the resources to handle too many variables.

Tell your doctors, tell your consultants, tell anyone that will listen! I encourage you to participate - Hoping for overwhelming response.

Regards,
John Herbert

PS: Don't miss this chance to make a difference.

ILRS update June/July 2004

Since I stated the ILRS quest, a total of eleven (11) candidates agreed to take part, from all corners of the global, with representatives from USA, UK and New Zealand.

I must admit, I was hoping for a better response. With the CDC estimating 20,000 cases per year in the USA alone, eleven seems hardly significant {no change from May 2004}. I have contacted countless organisations and media outlets across the planet with little success to date. Unperturbed, the quest will continue!

The recent revelation that contracting pneumonia, for the over 40's age group, is a factor for reduced life expectancy is very worrying indeed.

Therefore, more publicity is needed, to attract candidates, hence starting this blog. Hopefully the word Legionella will appear so often that search engines and information seekers will find it easily.

Whilst I specialize in managing Legionella Risk, it has always disturbed me that the feedback from suffers seems radically different from the published literature and the medical professions "...You are lucky to be alive..." Mentality.

Legionella is a killer, although, better detection and improved treatment have undoubtedly reduced the mortality rate. Yet this means more Legionnaires Disease survivor's will be seeking answers, that as yet medical professionals can't answer.