International Legionella Rehabilitation Survey
================================================
International Legionella Rehabilitation Survey
================================================
There is a very little literature or information regarding surviving and coping with the aftermath of Legionnaires disease and even less money to fund it.
Doctors all over the world don't have very much hard data to offer recommendations for patients, hopefully this survey will change that
situation.
I am still formulating my ideas, so feel free to comments, express your needs or other requirements, etc. No real names will appear in the results, and it goes with saying all information will remain confidential.
Only LD survivors know the real truth and have the experience. I am hoping this survey will discover useful hints and tips from various parts of the world that can be shared for the benefit of everyone.
Of course, if nobody participates there will be no results.
Since there is no money (except mine) and my spare time, the survey will be emailed. It will take time to compile, conduct and report, so please don't expect results overnight.
The survey will comprise a simple questionnaire asking basic questions about health before and after, medications, exercise, diet, etc.
Since this is a low cost survey, I can't accept a qualified acceptance; by that I mean a person that wants to do bits of the survey. Qualified acceptances would be classed as No, I simply
dont have the resources to handle too many variables.
Tell your doctors, tell your consultants, tell anyone that will listen! I encourage you to participate - Hoping for overwhelming response.
Regards,
John Herbert
PS: Don't miss this chance to make a difference.
8 Comments:
Hi John,
I hope the survey is going well, if it is possible I would like to help by completing the survey. I would be grateful if you send it to me.
Thanks a lot,
Damien
I just found your website tonight. I contracted LD in Puerto Vallarta April 2005 and have been home from the hospital about 10 days. So far recovery going well. Would like to take survery if still open. Had difficult time getting right diagnosis and treatment.
Feeling lonely? Hook up with Real Singles now for $4.99 to connect, and only $0.99 a min. A true match is only a phone call away. Give it a try 1-800-211-9293.
Get your High School Diploma, Or any Desired College Degree, In less then 2 weeks.
Call this number now 24 hours a day 7 days a week (413) 208-3069
Get these Degrees NOW!!!
High School Diploma "BA", "BSc", "MA", "MSc", "MBA", "PHD",
Get everything within 2 weeks.
100% verifiable, this is a real deal
Act now you owe it to your future.
(413) 208-3069 call now 24 hours a day, 7 days a week.
hello john,
i just found your site, and to be very honest,, i would of had a better chance at surviving ld, than what i have had at getting responses from agencies that are suppose to help with questions regarding this silent killer.
i was hospitalized in sept of 2004. went into respitory failure twice, have little at best as far as memory of the weeks leading up to my stay at the hospital,, and severe short term memory loss since.
upon release, i had forgotten how to write, had tremors in both hands, and arms, for months afterwards,was unstable in walking, my moods, have never gotten better. i can go from fine to absolute pissed, quicker than john force, can run the quarter mile in his funny car.
have been sent to numerous dr's,,,all of which haven't a clue, what this disease is. my treating dr, stated i was his first case in 20 years. i have my suspisions on the only two possibilities of where i could have contacted this disease, but nobody cares, so i get no help. to say i am pissed, is a complete understatement.
am totally unimpressed with the cdc, as well as the local cdc where i live. since i was the only verified case within my county,,,no investigation was ever conducted, even though, i work for the county, and the building in which i work, has large outside cooling towers to run it's ac units. i have contacted attorney's,,all are reluctant in assising in this matter. the one that did take an interest, sent me to a heart dr. what a joke that was. not a dam thing wrong with my heart.
i would be very interested in what ever you can provide as far as information goes regarding this disease.
nobody can assure me, that i will not have any lasting effects, as a result of the disease. all i keep hearing is, we don't know enough about it, to give any kind of long term analysis. i still work, in both of the places i worked at prior to getting sick. i have fears of this disease striking me again, even though, i'm told i cann't get it again.
i would be more than willing to take your survey, if it's still available.
frustrated..
gary pye.
hey, I just got a free $500.00 Gift Card. you can redeem yours at Abercrombie & Fitch All you have to do to get yours is Click Here to get a $500 free gift card for your backtoschool wardrobe
hey, I just got a free $500.00 Gift Card. you can redeem yours at Abercrombie & Fitch All you have to do to get yours is Click Here to get a $500 free gift card for your backtoschool wardrobe
hey, I just got a free $500.00 Gift Card. you can redeem yours at Abercrombie & Fitch All you have to do to get yours is Click Here to get a $500 free gift card for your backtoschool wardrobe
Post a Comment
<< Home